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Living with Brain Injury in Maine

by me
(Maine)

I am a 56 year male (mabye 55 ). My life is completely falling apart,because of a head injury I had at work. Its been 6 months I think. I seem to be getting great pt and therapy care.

My wife is my best friend in life as is she is also my life, but I am falling apart in my head.

Thinking is all over the place-concentration is terrible-my hand coordination is terrible when I concentrate.

Headaches come hard, memory well I have gone over this piece I don't know how many times to correct or finish it. I use a gps to stop from getting lost or forgetting where I am going.

MY finances are near bankruptcy after a life time of working. The fear my Job will be gone taken away from me, as it may take a few more months to get back to it. This is all from something that is well thats enough this is just to much.......

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Living with Brain Injury in Maine

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been two years
by: Me

I completely forget about this site then I get an update from here and read what I have posted. Memory and time are things that elude me,I have to live in a min. to min. world. I go for long walks really just wander around then use gps to get home. there are no headaches anymore. I listen to ambient music while walking to slow down the thought process as my mind is in fast forward, when something leaves my line of sight its gone. I get into small disagreements with family as I can't remember times dates appointments, but my wife my best friend is always there to set things straight. So to all stay the course live life the best you can.

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First six months
by: ANNONIMOUS

This is something that takes a while to adapt to, emotionally and cognatively. At six months in your still, am thinking, in the early healing phase. And when you throw the emotion into a healing brain it makes everthing much worse. Been there and done that, like all those commercials say, are you experiencing difficlty concentrating or lack of eneregy?
As you educate your self and become more aware of all the little things that effect you, you become more aware of the things that agitate you, light, sound, overstimulation etc. I myself hate fatigue and usually make sure I get as many brakes as possible. Bright setting for long periods or being in a noisy environment can really drain my brain. Which was an odd one for me to catch onto, the idea that a noisy setting could actualy where me down. So adjusting my settings to maximize the amount of energy I can give to a situation was something I found that worked. Rehabing just takes time and is very gradual.

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It may NOT be getting worse
by: Neil...AKA...Neil

I felt the same way after getting my bell rung. What's actually happening is you are becoming self aware of ALL the little nuances that come along with TBI. Guilt, Anger, Frustration are all feelings associated with the condition.

Some people say detachment is a symptom but I think detachment is what we do to limit the external stimuli that easily overwhelms our emotional receptors.

I think the headaches are sometimes a physical thing for sure but I also think they are tension headaches from trying to sort too many things out. Big business people suffer from headaches because they are dealing with extremely difficult and stressful situations over a prolonged period of time. We have the same stress level trying to sort out a complicated plot on TV or a cooking recipe.

The short term memory thing is something else again. I can't tell you how many arguments I've had with members of my family because I honestly had no recollection of them telling me something and I was upset that they hadn't told me. Driving down the road and forgetting where I'm going or worse not knowing where I am.

Time lines are another problem. I think things happened months ago and they happened just days ago and vise versa. I write things down all the time now, so much so that I forget why or when I wrote some things down in the first place. I'm getting where it doesn't matter to me (too much) I find most of the memory things don't really matter to me.

What's gone is gone and the only time I have trouble with it is when some well meaning person tries to help me remember by giving me hints or tips. It's like somebody poking an open wound, "Does that hurt?" I guess what I'm trying to say is,keep your chin up, do the best you can with what you have.

Your life may be over as you knew it but your life is NOT over by a long shot. Everything you were before TBI is still there. If you were a kind person, you still are. If you were a brave person, you still are. The people who loved you before, still love you and for the ones who don't, you didn't need them anyway.

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ME
by: Anonymous

Its night and I am alone
I stare at the wall and mins. turn into hours
Time has no meaning and I try to stay
Will I ever be me
I miss what was but can?t remember a min. ago
Inability,confusion,frustration
Will I ever be me
My thoughts are all over the place
Think Think Think should be slow slow slow down
Night time is depressing day time surreal in between is time passing
Can it be I will wake up tomorrow
and be ME

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